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HCRN Core Data Project: Characterizing Patient Populations in the Hydrocephalus Clinical Research Network (HCRN)

Recruitingn/aAges any - 18 YearsAllUniversity of Utah
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In plain words

What the trial is, and whether it could suit you

The Hydrocephalus Clinical Research Network (HCRN) has been established by philanthropic funding to conduct multi-institutional research (clinical trials and observational studies) on pediatric hydrocephalus. In addition to philanthropic funding, the HCRN has also received an NIH NINDS Challenge Grant to support the network infrastructure which allows for the conduct of this and other network studies. The HCRN consists of multiple Clinical Centers and the Data Coordinating Center (DCC). The HCRN Core Data Project will obtain data about all neurosurgical hydrocephalus events from the network Clinical Centers, and create a database to be used by HCRN investigators. The ongoing maintenance of the Core Data Project serves two main purposes: 1) it will help investigators understand the variability, progression, and current treatment practices for hydrocephalus in children, with an ultimate go

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: Information for all neurosurgical hydrocephalus patient events will be obtained from each HCRN Clinical Center and will be placed continuously into the Core Data Project. The first calendar year will be 2008, and data collection will continue for the duration of the existence of the HCRN. Neurosurgical hydrocephalus patient events include any operation for the treatment of documented hydrocephalus including the following: * Ventriculoperitoneal shunt * Ventriculoatrial shunt * Ventriculopleural shunt * Arachnoid cyst shunts * Subdural shunts * Lumboperitoneal shunts * Shunts replaced after treatment of infection * Shunts exposed during an operations but not revised * Endoscopic third ventriculostomies * Ommaya reservoir(s) * Ventricular access devices/reservoirs * Subgaleal shunts. Exclusion Criteria: The following temporary cerebrospinal fluid (CSF) diversion procedures will not be included in the Core Date Project: โ€ข External ventricular drain(s)
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What it tests

  • Not listed
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Where

14 sites
Children's Hospital of Alabama, University of Alabama
Birmingham, United States
Children's Hospital of Los Angeles
Los Angeles, United States
Children's Hospital Colorado
Aurora, United States
Johns Hopkins Children's Center
Baltimore, United States
St. Louis Children's Hospital
St Louis, United States
Nationwide Children's Hospital
Columbus, United States
Children's Hospital of Pittsburgh of UPMC
Pittsburgh, United States
Monroe Carell Jr. Children's Hospital at Vanderbilt
Nashville, United States

โ€ฆand 6 more on ClinicalTrials.gov.

๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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