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ENDO1000 - A UK-wide Endometriosis Research Project

Recruitingn/aAges 16 Years - anyFemaleUniversity of Edinburgh
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In plain words

What the trial is, and whether it could suit you

Approximately 1.5 million people in the UK, and 200 million globally live with endometriosis, and it is estimated to affect 1 in 10 women of reproductive age. Endometriosis is a chronic pain condition where the lining of the uterus (endometrium) grows in areas outside the uterus. This can cause patients a range of symptoms including severe pain, fatigue, irregular periods, infertility and gastrointestinal symptoms. There is a clear unmet need for early diagnosis and more effective pain management for people who suffer from endometriosis. Endometriosis is a heterogeneous disease in terms of symptoms, trajectory, and indicated therapeutic course, which highlights the need to develop personalised/targeted approaches for effective longitudinal management which are acceptable and accessible to patients and their health care team. The goal of this study is to accelerate discovery and advance

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
INCLUSION CRITERIA 1. Aged 16 or over 2. Participants who confirm that they have received a clinical diagnosis of endometriosis (based on MRI, ultrasound or laparoscopy) within the last 10 years 3. Living within the UK 4. Willing and able to consent to installing and using the mobile ENDO1000 app on their smartphone or use our web-based equivalent. EXCLUSION CRITERIA 1. Pregnant 2. Known severe coagulation disorder 3. Known active Hepatitis B/C and/or HIV (due to Royal Mail restrictions on biospecimen postage)
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What it tests

  • Sample and data collection
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Where

1 site
University of Edinburgh
Edinburgh, United Kingdom
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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