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Evaluation of Therapeutic Adherence Among Patients Followed in the Department of Hereditary Metabolic Diseases at Necker Hospital

Recruitingn/aAges 7 Years - 20 YearsAllAssistance Publique - Hôpitaux de Paris
NCT07356557 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The purpose of this study is to evaluate treatment adherence among patients followed in the Department of Inherited Metabolic Diseases at Necker Hospital, in order to assess the need for implementing a therapeutic education workshop focused on medication adherence.

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📋 Eligibility rules (as published)
Inclusion Criteria: * All patients followed in the Hereditary Metabolic Diseases department of Necker Hospital during their visit to the department for their usual care and having a specific daily oral medication treatment. * Children aged at least 7 years and adolescents/young adults * Holders of parental authority and children or adolescents or adults' patients informed and consenting to participate in the study Exclusion Criteria: * Metabolic disease without oral medication (intravenous treatments, amino acid mixtures, and dietary regimens are not evaluated). * Patient and parents not proficient in French. * Refusal by the patient's holders of parental authority or adult patient to participate in the study and/or refusal of the child/adolescent.
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What it tests

  • Questionnaire
  • Calculation of the metabolic balance score
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Where

1 site
Hôpital Necker-Enfants Malades
Paris, France
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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