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โ† Trials
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Informational Needs of Caregivers of Patients With Neuromotor Disease in Rehabilitation Hospitalization: Validation Study of the QBI-R/V

RecruitingNAAges 18 Years - 80 YearsAllIstituti Clinici Scientifici Maugeri SpA
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In plain words

What the trial is, and whether it could suit you

Background and rationale. Although the literature suggests that caregivers have different needs at various stages of the patient's illness, to date, most studies have focused only on the needs of caregivers of patients with specific diseases or during specific periods of the illness trajectory, and have not explored changes in caregivers' needs throughout the entire neuromotor recovery process, from admission to discharge in rehabilitation wards. In a patient-centered care perspective, it is important not only to explore the informal experiences of patients and caregivers regarding outcomes and consequences of the transition from hospital to home, but also their perspectives on interventions that would support them in self-management. In this context, this study represents the next phase of a qualitative study that identified the underlying dimensions of caregivers' informational needs,

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๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: 1. Male and female subjects of Italian nationality over 18 years of age; 2. Being a caregiver/family member of a patient with a neuromotor disease; 3. Signing the Informed Consent and agreeing to participate in all study procedures. Exclusion Criteria: 1. Caregivers over 80 years of age; 2. History of cognitive/psychiatric deficits that may compromise the ability to provide help and/or understand the administered questionnaires.
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What it tests

  • QBI questionnaires
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Where

13 sites
ICS Maugeri IRCCS
Sciacca, Italy
ICS Maugeri IRCCS
Bari, Italy
ICS Maugeri IRCCS
Telese Terme, Italy
ICS Maugeri IRCCS
Lumezzane, Italy
ICS Maugeri IRCCS
Castel Goffredo, Italy
ICS Maugeri
Mistretta, Italy
ICS Maugeri IRCCS
Veruno, Italy
ICS Maugeri IRCCS
Montescano, Italy

โ€ฆand 5 more on ClinicalTrials.gov.

๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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